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Wednesday, May 16, 2012

There is Strength in Numbers

Jimmy with his family and Josh Harrod  as he read about his WineFest painting Cafe at Night














The saying that there is strength in numbers is an absolute truth with autism.  Jimmy's success is the culmination of the efforts of many people in his life.

First and foremost, his family.  Surrounded by the love and compassion of his parents and siblings, Jimmy is thriving. This past Saturday night, he presented his painting, Cafe at Night, to a crowd of well over 700 people.  He was a rock star and received a standing ovation. I am humbled by his success finding it hard not to forget the sickly Jimmy laying motionless on the couch or screaming in pain not knowing how to ask for help as he struggled to find words.  His siblings have always believed in him and his potential. Kelly, Jack, Patrick and Ned have been tireless supporters of their brother.  I am a very fortunate mother of five lovely human beings. As parents, Brian and I, could not be more proud of our children - they are good human beings who support each other.

Secondly, there are the legions of professionals that have help Jimmy throughout the years. One of the more important people in Jimmy's life is is Josh Harrod. Josh has been a constant companion, role model, instructor, friend and mentor of Jimmy's.  As I have said many times, angels surround me and support me in my time of need.  This is particularly true with Josh.  In 2007, Jimmy was so sick that we had to remove him from school.  This meant that not only would Jimmy be home bound, but, so would I. I needed help.  I made calls to find someone who would be a fit for Jimmy and our family. I was discouraged as I just didn't seem to find the right person.  Our oldest son, Jack, was a ski racer and needed new skies and boots.  We took Jack to the store....buying new skies and boots can be and was a long process. I got to chatting with the woman at the store and she
Patrick and Ned holding Jimmy's painting during the Live Auction
asked about our other kids. Our conversation turned to Jimmy and his current situation.  It was a very difficult time for me. This lovely older woman said, "my daughter's former boyfriend is moving back to Minnesota - he works with kids with autism and wants a career in autism." She called him from the store. Josh called me later that day.  I knew almost immediately he would be a good fit. Honestly, I had no idea how good it would be. When I say angels surround me in my time of need, I am not kidding.  Josh told me a few months ago, that the woman that I talked with was only at the store that day as a favor to the owner - she was filling in and did not work there. Josh came to us in a time of tremendous need.  He has seem Jimmy at his worst and now at his best.  He was with us on Saturday night. We are fortunate.

As the evening closed on Saturday night, Brenda Weigel, oncologist at the U of MN, asked if I would talk with a couple who has a 7 year old son with autism. I was more than happy to visit with them.  They said that Jimmy gave them hope for their son.  What an honor to be able to give someone hope.  It is an interesting twist.....Jimmy is offering hope to other families and those families give Jimmy the strength, desire and support to do what he does.  Like I said.....there is strength in numbers!

Sunday, May 6, 2012

Factory-Art Gallery- Berlin, Germany, May Be (R)Evolution Exhibit

Here is the link to the Factory-Art Gallery Berlin, Germany exhibit where Jimmy is Guest Artist.  The paintings are on route to Berlin.  Opening is on May 10th and Exhibit runs from May 11th to June 8th, 2012.

http://www.factory-art.com/exhibitions.html

Wednesday, May 2, 2012

YouTube video of Jimmy Creating Girl with Hat.


Girl with Hat Painting
Acrylic n Canvas, 2012
Girl with Hat and her travelling companion, Golden Hair Man, are on their way to Berlin, Germany for the Factory-Art Gallery exhibit May Be (R)Evolution. Check out this YouTube link that shows Jimmy creating Girl with Hat. You will also see Girl with Hat pastel which Girl with Hat painting is based.


http://www.youtube.com/watch?v=j0FzU8wKWFM

Golden Hair Man Painting
Acrylic on Canvas, 2011

Thursday, April 19, 2012

The Sky is the Limit and the Tide is Turning - these aren't really cliché statements!


Jimmy at the Seven Mpls Sky Bar with his Clear Channel Outdoor billboard. 

I have been in a variety of meetings with people in the autism community  in the last few weeks and I have great optimism for the potential for good things happening here in Minnesota. Partnerships that will greatly benefit families are being forged.  We are coming off our islands in search of each other.  I feel a sense of promise that the ship is finally headed in the right direction.

With the development of Jimmy's art, people see and treat  him differently. Our family has always seen Jimmy as a smart kid with great potential.  But never imagined that his art would be on billboards?  Our challenge has been to help others see him as we do.  This is part of the conundrum called autism. I have written about this with great frequency. It seems as though families with autism are make headway as I am seeing and hearing optimism from providers, teachers, researchers, doctors and employers….it is as though the lights have been turned on.  We seem to all be seeing and hearing things in a different way that I am certain will lead to solutions and improved outcomes for those with autism and their families. So, the tide is turning and I feel like it is about time.

Remember that the sky is the limit and be sure to keep your lights on - it will certainly be beneficial! 

Wednesday, April 11, 2012

Art - Impact and Reach


Three Cows, Oil Pastel and Pen on Paper, 2012 by Jimmy Reagan
Since Jimmy's diagnosis with autism when he was 2 1/2, our journey has been a path full many blind hills and perilous turns which drove our fears of his unknown future spiraling into worry.  When asking physicians what his future would hold, suggestions, potential or even an inkling of a visual image were not offered. How could there be a vision or answers? Autism was a virtual unknown effecting 1 in 10,000 births when Jimmy was diagnosed in 1996. We were a society of the blind leading the blind.

Hanging onto the hope I saw in Jimmy's face was often a difficult chore. Yet without hope, discouragements are easy to see and hard to let go.  I realized early in Jimmy's diagnosis that I was someone who was positive and outcome focused.  At first, I thought others were like me as well.  But, I found out fairly rapidly that many people with newly diagnosed children were not as optimistic as I was and many were devastated without hope. Honestly, I am not sure how I was optimistic….the diagnosis seemed like a death sentence. But then again, I have always been a person who liked the odds for the underdog.  My husband used to describe how we felt about the autism diagnosis as follows: your child has a terminal disease that will last 80 years, he will suffer endlessly, it will cost you a fortune and there are no treatments for his illness . Boy, loads of encouragement there….yet, that was the state of care and knowledge about autism 16 years ago.  Thankfully, our society is making some progress in understanding and care.

Over the last few weeks, I have received numerous emails, had conversations and overhead conversations full of hope.  Hope that Jimmy has generated for other kids in the spectrum and their families.  Truly, I didn't see this coming and I think that it is important to share.


Blue Dog - Oil Pastel on Paper, 2010, Jimmy Reagan

A few weeks ago, I delivered a Blue Dog prints to a pediatrician who purchased it. She hung it in her Clinic office and shared Jimmy's story with her colleagues  - several who had seen him as a patient.  Having many children in the spectrum in her practice,  she told me that Blue Dog would be her reminder that every kid with autism has potential.  She would look at these kids differently.  Not only did she enjoy Blue Dog for the art, she sought to find better understanding of kids with autism as a result of her exposure to Jimmy and his art. I had no idea that Jimmy's art might have this impact. I have heard similar stories from the doctors at the University of Minnesota Autism Spectrums Disorders Clinic where several of Jimmy's pieces are hung. I have realized that Jimmy's art reaches people in so many different ways.

Impact and Reach are interesting words which have gathered new meaning for me. An email was forwarded to me over the weekend from Brian's aunt who recently lost her husband. She used one of Jimmy's note cards to thank a friend who had sent her condolences.  The friend has a nephew with autism and was quite taken by Jimmy's note card and his website. Her nephew is 8 years old. This lovely woman described how she was spending time and working with this young man.  She found Jimmy's art an inspiration for herself and her nephew.  She used the words impact and inspiration several times in her communication.  She believed that Jimmy's website would offer hope and encouragement  for her nephew and his family.  In the last few years, I have thought mostly about how Jimmy's art effects Jimmy and less on how it impacts others.  Truly, I just had no idea how his work and accolades would change the way people think about Jimmy and those with autism.  When Jimmy was young,  we didn't have a "visual" image of what he might look like as an adult or what his future might hold. Jimmy's art offers others that "visual" message that was missing for us.

Italian Coast - Acrylic on Canvas, 2012 by Jimmy Reagan
"Reach"  is defined by Webster as: to stretch out physically or extend as far as a particular place or point. In other words, how many people can you touch with what you do. Recently, Erik's Ranch and Retreats applied for funding from a Foundation.  Their request was turned down because the Foundation was looking to fund organizations that had more "reach" than Erik's Ranch and Retreats does at the moment.  Now at first sight, you might agree - Erik's Ranch and Retreats tour program has less than 10 kids in the program and the Foundation was hoping to "reach" more like 1,000 individuals.  These 7 kids from Erik's Ranch and Retreat will, in fact, offer tremendous "reach" as Jimmy has.  They will show potential to others who had a different impression of what might be possible. They will offer hope and encouragement  to others in the spectrum and their families.   They will "reach" many.

Cow and Goat #2, Oil Pastel and Pen on Paper, 2012, by Jimmy Reagan


Recently, there was a reception for Jimmy in Northfield. The weather was horrible - torrential rain discouraging the large crowd that we had hoped for.  Sales were not the highlight of the evening.  Although, a  group of young artists who share Jimmy's challenges were most certainly the highlight of the night.  This group of young artist in their late teens and twenties arrived with joy and respect for what they saw on the walls. I overheard conversations which went like this: "maybe, I could make note cards and  maybe, my art could be on the walls of this store." Parents thanked us for coming and showing their kids what potential they have. Jimmy's art offers a sense of hope for kids in the spectrum and their families.  We  "reached" many people  on that rainy night. 

Girl with Hat - Acrylic on Canvas 2012, by Jimmy Reagan
The data. Jimmy's website has had nearly 90,000 hits since last May.  He has had visits from countries around the world with regular visitors from the US, Russia, UK, Germany, France, Canada, Sweden, Norway, Argentina and many others.  He was recently invited to submit works for an exhibit in Berlin, Germany. We will know at the end of the month if he is accepted into the exhibit.  He is currently on the University of Minnesota Website Home page.  His work CafĂ© at Night  went up on Clear Channel billboards across Minneapolis and St. Paul on Monday. Jimmy's "reach" is worldwide.  If someone told me this was going to happen a year ago, I would have told them they were nuts.

Jimmy's art speaks for itself with joyful color combinations, mysterious and intriguing portraits and subject matter that is easily relatable.  Jimmy can't speak for himself yet his art speaks volumes encouraging kids who share his struggles and their families offering hope when hope seems so hard to visualize.  I never imagined that this could happen.  I am so grateful that he has become a messenger of hope and potential - this may be Jimmy's true gift.  

Wednesday, February 29, 2012

Jimmy Reagan, Artist - movie

Jimmy has been working on making a presentations of his art. Some of this presentation is directly in Jimmy's writing voice and other parts are in mine. His language is challenged, but he is a great reader.  So, a PowerPoint format works well for him. After Jimmy lost his language at around age 2, he developed a keen ear for music and could hum various difficult classical pieces of music. One of his favorites to hum was Vivaldi's Four Season. So, I thought that it was fitting to pair his PowerPoint with one of Vivaldi's beautiful works.  Be patient with me as I am learning PowerPoint and movie making on an ancient computers. :)

Tuesday, February 21, 2012

Kelly or Grace - 21 years ago today

Kelly in Rome

Today, my daughter Kelly is 21 years old.  Hard for me to believe she was born 21 years ago.  Kelly is my only daughter and cherished friend. Today, she is a junior at Holy Cross College in Massachusetts studying Economics and Political Science.  She has been a member of the golf team for 3 years, is a sports writer for the school online newspaper, participates in a leadership in athletics initiative, is a Dean's List student, has recently been invited to be part of a national honor society among many other accomplishments.  But this doesn’t describe who Kelly is and the difference that she makes in my life.

Ballerina #1
As the oldest of five kids, Kelly has lead the way for her brothers. She is smart and beautiful. By definition, the name Kelly means "Bright-Headed". She works harder than most people I have ever known.   She loves her brother's with more heart and soul than one might think possible. She is compassionate, honest and funny. In addition to her brains and athletic abilities, she can sing.  Her brother's are certain that she would be an excellent American Idol candidate.  Like Jimmy, she is an artist. She has won art awards at the Minnesota State Fair. Perhaps, she is the one who inspired Jimmy. Until recently, she hasn't been producing much art. But, in the last six months, she has made time do a little drawing. I think that these ballerina's highlight the grace in Kelly's heart.

Actually when she was born, we weren't sure if we were going to name her Kelly or Grace. In spite of her frequent clumsiness (certainly inherited from her mother), we often joke about how humorous it would have been had we named her Grace.  The truth is she is both Kelly - "Bright-Headed" and Grace -defined as a "Blessing and Virtue." Kelly is full of grace and strength. She has made it better since the moment she entered it. 

Happy Birthday Kel-bel!