Orange Cafe at Night - 16"x20" Acrylic on Canvas 2012 |
Oh, the places you can go……the world has been expanded for
Jimmy Reagan.
Jimmy has excelled in Geography since he was
young….memorizing the states, capitols and continents with great ease. His art pieces are frequently named for
places our family has travelled or places he would like to go. In recently months when we ask him were he
would like to travel, he starts big….China, Japan, France, Italy,
Australia…..then quickly onto every state in the US. Travelling by air to these places has never
been an option for Jimmy.
We have taken many trips to Montana by car. But, Jimmy had
never been on a plane. With 5 kids,
flying was not our first choice for travel…too expensive and complicated. Jimmy was 8 when the tragedy of 911
occurred. After 911, flying with someone
with autism just wasn’t something we would ever consider given all the
difficulties of even getting on a plane.
When Jimmy was diagnosed with autism the incidence was 1 in 10,000
births. In 2001, most people still
believed that autism was rare. It wasn’t until 2003 that the U of Minnesota
incidence study was published showing autism was present in 1 in 250 kids in
Minnesota…..more reason not to fly as the public was not well educated on what
autism was/is and how to best help families. So, at age 19, Jimmy had never
been on an airplane until this week.
Jimmy with AirTran pilot learning about the plane |
Sometime last spring, I decided that we should try a short
flight to someplace motivating for Jimmy.
Having recently been to the Art Institute of Chicago, I knew that they
had a wonderful collection of impressionist and contemporary art….just the
place for a motivating trip. The flight
would be short and my sister lives in Chicago….so, if we had problems, I had a
back up plan.
Josh and Jimmy at the Art Institute of Chicago |
Jimmy has come such a long way with his health and
accomplishments in art that flying for him would benefit him greatly….helping
him grow as an artist and human being.
Autism is so isolating for both the person who has autism and their
family. With great hope for success, I
started to plan for the trip….preparing Jimmy, me and Josh for all the what
if’s for a first flight and walking the streets of a very busy city….both new
experiences for Jimmy.
Josh and Jimmy in Chicago |
We decided to fly on Southwest Airlines….their reputation
and our personal experience for having friendly staff was important. Flying out of Terminal 2 in Minneapolis
(smaller airport) to Midway (smaller airport) in Chicago gave us a good chance
for success. Family friend, Angie
MacDonald, works at Southwest. I called
her to ask if we could come to “practice” at the airport before our actual
flight. I had no idea what a fabulous
experience would be in our future.
Jimmy in the cockpit of an AirTran plane at Terminal 2 Minneapolis, Minnesota |
Angie connected us with Metropolitan Airports Commissions
staffer, Shelly Lopez. Shelly called me
to set up a tour/practice at Terminal 2 last Tuesday morning. On the phone,
Shelly asked remarkably well informed questions: does Jimmy use an iPad to
speak, how is he with touch, does noise bother him, etc…. I was impressed!
Shelly met us in the parking lot. Took us to pick up a pass for security and
brought us through security. Much to our
excitement, she took us to a gate where we met Mike Gregory. Mike arranged for us to meet flight crew from
Air Tran. The flight crew brought us on
board…Jimmy got to sit in the cockpit…what a treat.
Now you might think, how did we get such special treatment?
Well, the good news is that it wasn’t special treatment. The Metropolitan
Airports commission is working with Fraser and other community partners to help
people with disabilities fly. The
program will be launched in January…Yippy!!!!!
As you might imagine, I was likely as anxious as Jimmy was
about flying. I mentioned this to my sister last week. She told me about a friend who was traveling
with twins who had colic. The family
made small “treat” bags to give traveler who sat near them letting fellow
travelers know that they were doing the best that they could under the
circumstance and that they greatly appreciated their patience. I thought this was a wonderful idea. So, I
packaged up Jimmy’s note cards to take with us to Chicago. We handed them out to people who helped us along
the way.
Rosie - 16"x20" Acrylic on Canvas 2012 |
I have always known that simple acts of kindness make a
big difference. It was never more
evident to me than it was this week. When people first meet Jimmy, they see his
challenge to speak and often recognize his disability as autism. This was the case with many we encountered in
our travel to Chicago on Thursday and at our practice on Tuesday. When we gave Jimmy’s note cards to those who
helped us, the response was so rewarding and surprising. The shock at the
quality of Jimmy’s artwork given his challenge was evident. The fact that
someone said thank you to people who likely don’t hear it very often was
remarkable. I feel like we changed perspectives on Tuesday and Thursday. Jimmy’s artwork has become a non-verbal means
of changing the way people think about him and others in the spectrum…..the
people we connected with on Tuesday and Thursday will see people with autism
differently. That wasn’t my plan…..just
a great byproduct of a successful trip.
I am just so grateful that so many people were willing and happy to help
us open up the world for Jimmy and our family.
Thanks to:
Angie MacDonald – Southwest Airlines
Shelly Lopez – Metropolitan Airports Commission
Mike Gregory – Southwest Airline
Flight
to Chicago:
Captain:
Rob Nohrn
1st
Officer: Brian Crockett
Flight
Attendants: Emily Scherzberg
Kristy
Ramirez
Tina
Henry
Flight
Home:
Captain:
Kevin Sinibaldi
1st
Oficer: Kimberly Lane
Flight
Attendants:
John
Theuerkauf
Charles
Kallick
Linda
McQuaid
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