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Wednesday, November 9, 2011

Look At Me Now!

If you have been reading my blog, you know that Jimmy has been a profoundly ill human being most of his life, plagued by infections, allergies, GI distress and failure to thrive to list a few. I was looking through the photos on my phone the other day and I was stunned by an image of Jimmy that I had saved from January of 2007.  We were in the gastroenterologist's office waiting to be seen when I took the picture thinking he was so thin…..but, was content for the moment….I never knew how long that would last.  Jimmy had been so sick weighing only 62 pounds at this appointment….he had fallen off the growth charts having been in the 50 percentile much of life.  Now, he was almost 14 years old and 62 pounds….what was happening???  He looked more like a seven or eight year old. After diagnosis and treatment for failure to thrive (typical of newborn not a teenager), low growth hormone, GI infections and gastritis, Jimmy began to recover from the illnesses that together removed him from school and the interaction of his friends and our community.  He became an isolated human being.

Some may mistake this for typical behavior of a person with autism. Certainly, an untruth forged by media and old ways of thinking about people with autism. His autism impacts his ability to communicate but not his desire to be loved and love, feel joy, have friend and thrive. His illnesses caused him to isolate himself just as it would for any of us without autism.
In 2007 with the help of U of MN doctors, he slowly began to recover.  He gained 10 pound by April yet still looked gaunt, pale and lifeless.

So much was missing for this human being. Depression and Anxiety were certainly a big part of Jimmy's life having lost more of his language with this last illness.  How frustrating and depressing it must be to be unable to verbalize what you want to say. But, this has been the position Jimmy has been in since he lost his first words at age two.  Who wouldn't be depressed when your ability to communicate is lost…..just ask a stroke patient. With the guidance of his tutor and art instructor, art entered Jimmy's life in 2007.  Although Jimmy has great difficulty with conversation, his art has allowed others to see his potential.  His art speaks for him when words are so hard to find. We all feel good when people appreciate our work.  Jimmy is no different. Art had given him purpose and a new found ability to thrive.

Recently, Jimmy donated a piece to the Miracles for Life Worldwide fundraiser http://www.miraclesforlifeworldwide.org/. 
This worthy organizations educates and encourages organ and tissue donation.  Jimmy attended the event where he showcased a few pieces as well as donated one. This was a rewarding evening for Jimmy and our family. Jimmy was engaged with many people he didn't know. They congratulated him and told him how much they enjoy his art. This picture taken at the event speaks a thousand words…..here is a young man who is thriving both physically  and mentally. So, look at me now!

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